Home

Seth is finally home! If I'm being totally honest, earlier today I have to say I didn't feel that excited. I think the wind was sucked out of the sails with the news about him failing the hearing test three times. Emotionally that set me back a bit. That, and I think just being nervous had something to do with it. But now that he's home and in his little crib and seeing the boys interact with him, I'm REALLY glad he's home.

Getting him home was one of those everything-goes-wrong kind of days too. We got some cupcakes for the nursing staff and as we were heading for the door, I checked the cupcakes and noticed that the smaller box they put on top of the larger box had broken the cellophane top

and crushed a half dozen

cupcakes (at $4 each, that's a pricey crush.) So we lost those six. Then, we got to the hospital, and I realized that I had left the oxygen tank at home--you know, the one he needed to get from the hospital to the house!! So Janice and I went into the hospital, and as we're heading in to wash our hands, I accidentally hit the power button on his apnea monitor. And it wasn't monitoring anything. So it set off the alarm. And that thing is LOUD!!!! And I didn't know how to turn it off. So I had a bunch of nurses running out to see what was wrong and why this excruciatingly loud siren was going off. Lovely.

So Janice went in and fed Seth while I went home to get the tank. I got back to the hospital and realized I forgot the key to turn on the tank. Luckily as I was getting off the elevator I ran into one of the RTs and asked him if he had one. We went down to the basement and he helped me turn on the tank. And to round out the day, most of the oxygen had leaked out because they had given us a bad regulator. Lovely. We ended up having to borrow a large tank from the hospital so we could make it home.

Once we finally got home we started getting things all set up and I went to plug in the g-tube machine and realized that the hospital had kept the cord. So I called them and sure enough they had it. So at 1 am, I went BACK to the hospital to get the cord (and return the tank). And I thought I was done with the 1 am hospital visits!! Sheesh!

And now it's 4:15 am, we have two feeds under our belt, and we have to get back up in about 45 minutes for the next one. All the sudden this is making the 1 hour hospital visits look like a cake walk. But so it goes. At least our little miracle baby is home and hopefully tomorrow we can start the process of getting back into a normal routine.

By the way, there's way more I could've written tonight, but this was already long enough. I'll write more in the next few days.