Monday, October 11, 2010
Better, But Still Relative
Some days these posts are therapeutic, some days they are burdensome. Today it's burdensome. But the upside is that he's doing better.
I guess I'll kind of give the nutshell version, sicne it's all kind of becoming a blur anyway. I think since I last posted, he's had four more surgeries all related to the chest tube. They've put in new ones, bigger ones, adjusted old ones and taken out ineffective ones. Something like that. He had a couple of them in at one point, but now there's just one. He was still satting in the 60s and 70s for most of the week. He did reach the 80s off and on.
I know today the church fasted for him, as did we. Tonight he was satting in the 90s, so it's truly been a miracle. I still know it can go either way, but at least for now he's not suffering, and that to me is the most important.
He looks better and today he was opening his eyes and looking at us. I'll try to post a video if it'll let me.
He's still intubated. I'm not sure what the settings are right now, but I think they're still pretty high. Tonight was the best he's done since he got sick. So I can't imagine they've weened him down yet. They reopened the third floor NICU and he got moved down and into the private patio. That's good and bad--good that we have total privacy and essentially our own little room. Bad cause it means he's the most critical. But he's on the mend, so that's good.
We were told by the nurse that he's got some heart issues we'll have to work through, but we haven't talked to the doctor about it yet, so I don't have much info on that right now.
I don't know if there's really too much else to report. I guess that's a good thing.
Photos:
-One of the surgeries to insert the chest tube
-After the operation with one chest tube and line to insert meds/draw blood (or something like that)
-The last one is from today where he was finally put on his side. He was so happy--but also on drugs so that's why he's out and probably in happyland.
Labels:
down syndrome,
hospital
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Take it day by day and when you can't do that, take it moment by moment. You guys continue to be in our thoughts and prayers. Don't forget to take care of yourself too.
ReplyDeleteI can't add a thing to Tammy's perfect comment except that I agree whole heartedly! Love you!
ReplyDeleteI just watched the video again and it makes me smile and think, "Yea!! He looks like a real little baby again!!"
ReplyDeleteAnd the video shows he's a fighter...love how he's gagging on the tube...like get this thing out of me!!!
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